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Skip Treatments While on Vacation

This entry is part 6 of 19 in the series What CFers Do

DrivingI’m doing my best and will continue to do my best this trip, but I’ve been a bad boy most of my life – certainly my adult life. Vacation is not the time to be sitting around nebulizing and such, eh? So far, so good on this trip, though.

I remember our annual Spring Break trips to our time share in Tennessee involved bringing my aerosol compressor, but I don’t recall having to do chest PT because back in the day, that meant Mom and Dad had to do it, and they were on vacation, too.

When I spent a week in Colorado Springs back in 2002, I’m pretty sure I only brought my inhalers… probably not the best idea, considering the altitude. I did fine, though, and that’s why I never worried about treatments for a few days. Or weeks. Or months. Until I got sick and went on IVs.

Back just after we got married, the only thing we brought was my Albuterol and Pulmozyme with my ailing eFlow that took 30 minutes to dispense the meds. I was not into that at all and probably only did 1/5 of my treatments. I also didn’t do my Vest back in the day because, well, I think the Hill-Rom vest is a piece of crap forcing you to hold down a pneumatic switch to make it run. What moron thought up that idea: an active switch for a passive treatment? /end rant

Lesson learned – the hard way

"Smoking"I did my nebs last night at the hotel, this morning before we left, got my AZLI in after we got to the cabin, and the full course again after dinner. I’ll bust out the Vest in the sitting area upstairs in the morning and either do it before or after we go out… depending on the state of my upper left lobe. I got Beautiful to snap a photo of me “smoking my pipe” at the breakfast bar where I set up neb camp.

I’m kicking myself for not bringing our scale with us, but that will just make that much more of a surprise when we get home if all goes well. My resting heart rate must already be down to 55 or so and I got an hour or two nap when everyone else went to the grocery store to stock up. I guess she didn’t have the heart to wake me up to go out again after two days of driving. As a side note, you can tell in the driving photo that it’s time for my new 125lb photo for the header – check out those cheeks! The site is getting a re-design to do some more of the things I do with sites if I have the time this week to do it in one sitting, so maybe that will be a part of it… you’ll have to wait to find out.

We are going to have to go back into Gatlinburg to see some of these sights instead of just snapping photos as we drove through trying to not hit a million pedestrians.

Comments

  1. Blankethouse says:

    I dont usually take my Nebs while on Vaca. Especially if I'm flying and it's only a long weekend type deal. When I left fro AZ and Hawaii, I was gone for 13 days total. I brought my Albuterol and Advair and Spiriva. I take a neb of Saline, 7%, but I was like, I'm going to be in Hawaii, you can't get fresher salt air than that. So, I opted not to take any Nebs and I was fine. It's such a pain to pack that stuff if your flying somewhere. If I do, I usually pack it all in my suitecase and check the bag. I also put a letter that I have from my Doc stating I have CF blah, blah. In case Security checks my bag, they see the letter right on top.
    This past trip to Boston, I took my inhalers, but not the nebs. It was fine…so far!

  2. I think I might get to that point when I'm up in the 50s and 60s like I'm
    gunning for, but when I'm still in the upper 30s, we feel like it's best to
    do every treatment I can. One of these days…

    I totally agree with the no saline on a HI trip. You can't get any saltier
    than that – almost the conditions that they used to discover the treatment.
    We have a place in Orlando called “The Salt Room” that I want to check out,
    but my coordinator wants to check out what they do to address any
    cross-contamination possibilities.

    It's awesome that you're doing so well as “an old man” – and I'm right
    behind you when my numbers get up there.

  3. Blankethouse says:

    I dont usually take my Nebs while on Vaca. Especially if I'm flying and it's only a long weekend type deal. When I left fro AZ and Hawaii, I was gone for 13 days total. I brought my Albuterol and Advair and Spiriva. I take a neb of Saline, 7%, but I was like, I'm going to be in Hawaii, you can't get fresher salt air than that. So, I opted not to take any Nebs and I was fine. It's such a pain to pack that stuff if your flying somewhere. If I do, I usually pack it all in my suitecase and check the bag. I also put a letter that I have from my Doc stating I have CF blah, blah. In case Security checks my bag, they see the letter right on top.
    This past trip to Boston, I took my inhalers, but not the nebs. It was fine…so far!

  4. I think I might get to that point when I'm up in the 50s and 60s like I'm
    gunning for, but when I'm still in the upper 30s, we feel like it's best to
    do every treatment I can. One of these days…

    I totally agree with the no saline on a HI trip. You can't get any saltier
    than that – almost the conditions that they used to discover the treatment.
    We have a place in Orlando called “The Salt Room” that I want to check out,
    but my coordinator wants to check out what they do to address any
    cross-contamination possibilities.

    It's awesome that you're doing so well as “an old man” – and I'm right
    behind you when my numbers get up there.