Comments on: Feedback Request on Meconium Ileus Scars

By: Jesse Petersen

Jesse Petersen — Mon, 18 Oct 2010 10:31:00 +0000

Yeah, not being alone has been a huge help.

By: psboy

psboy — Mon, 18 Oct 2010 10:19:00 +0000

Have had all the same issues, not as a CFer but from IHPS (infant pyloric stenosis) surgery. Self consciousness, fused scar and muscles, sectioned look. Plus having to deal with parents traumatised by the experience. But usually few ongoing physical effects from the surgery I had. Adhesions seem to be expected with most abdominal surgeries. My wife’s easy acceptance was the start of my healing too. Good to know we’re not alone, thanks for putting these bridges out there.

By: Jesse Petersen

Jesse Petersen — Mon, 02 Aug 2010 22:15:33 +0000

I'm SO not alone! Wow, CF friends rock! I'm switching to bigger shirts that camo this gut for now, but Beautiful says I'm still growing into my Fatboy suit. My gut should slim down after it distributes once again – every 10lbs gained.

By: Jesse Petersen

Jesse Petersen — Mon, 02 Aug 2010 22:13:40 +0000

This reminds me of the story I can tell about how they finally removed my last stitch from my scar when I was about 19. I was always getting an irritated blackhead that would turn red, get infected, and puss out for a week or two. I'll stop now so there is still a story to tell.

It's nice to not be alone.

By: Jesse Petersen

Jesse Petersen — Mon, 02 Aug 2010 22:10:50 +0000

I would guess that it's not always successful and I believe that sometimes the intestines are actually blown apart. I believe that was my case, but I'm sure my mom will let us know if that's wrong.

I have always been self-conscious about my scar, but it's gotten better since getting married. It doesn't bother her, so why would it bother anyone else? Beautiful said that other people we see that have various physical differences are much more obvious than my scar, so I'll just have to believe her.

By: pleasepassthesalt

pleasepassthesalt — Mon, 02 Aug 2010 01:17:04 +0000

Ok, maybe I'm a total oddity. I was born with meconium ilieus, but didn't need surgery. I am told the latest, greatest technique when I was born was to “roto rooter” from both ends of the blockage. I'm curious why CFers younger than me (like Jessica and Lauren) needed surgery. Maybe the roto rooter technique isn't very successful? I always remember my dr showing all the med students my stomach at clinic and being super-excited that I have no scar.

Back on topic, sorry so many CFers with meconium ilieus experience such bothersome abdominal scarring. When you have so many internal medical issues, it's got to be frustrating to have some very visible reminder that that you can't pretend to be normal if you're out swimming or doing something that shows your stomach. :-/