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Sick and Tired – CFers Down!

Behind BarsI think 80% of my CFer friends have been working too hard, stressing out too much, or hanging out with the “sick crowd” this spring. It seems like every time I look at Twitter or Facebook, someone is going to the hospital, getting IVs, or wiped out and laying in bed.

It appears that my transparency about compliance yesterday resounded with quite a few of you who are busy. Starting my treatments back up has started a plan to not work until after lunch because getting my treatments done around 11am and then working for an hour before lunch is really no way to go about your day, so I’m using the mornings to completely take care of myself. Relaxing and doing my crap.

Doing night treatments are as big of a pain because we usually watch TV, which we can do while I do my Trio and Altera stuff, but it’s out of the question when I’m doing my Vest, although Beautiful can watch shows while I do my sinus neb if she is up by the TV.

I’ve got one more episode of Lost to go before I jump back into “24” Season 2. Everyone said to ditch Heroes after Season 2, so I can wait before finishing that season if it’s going to be my last. If ALL of my friends say it stinks after that, I have to question those who watched it until the end… maybe those are the ones not to take TV and movie advice from, eh?

So, that’s what I’ve done to completely rearrange my life to get/stay healthy. I feel a little better now, but I still feel junky in the morning. What steps are you going to take to both have a life and keep your life?

Comments

  1. One thing that helped me stay compliant with my nighttime treatments – as I am an avid TV watcher as well – was investing (by way of Christmas gift) in a pair of wireless headphones.

    Good decision on waiting until after your morning routine to put that nose to the grindstone.

    • Yeah, I think I tweeted that this morning and didn’t want to dupe it on
      here. Too many things to buy, too much money to make to do it. One thing at
      at time. Looking at a wireless headset for working first b/c I wear those
      longer.

  2. Lauramagsamen says:

    Jesse- I’m glad to hear that you are making YOURSELF a priority!

  3. You post reminds me of a post I wrote a while back: http://cfstinabug.blogspot.com/2010/09/graduate-school-spoons.html

    I know it’s hard to balance CF and everything else.
    It sounds like you’re making great choices though.

    Keep it up : )
    Hope you can bump this exacerbation quickly…

    • Thanks for the link/reminder. I’m doing what I have to again, as much of a PITA it is to go from breakfast to the couch for 90 minutes and dinner to the couch for 60 minutes when I want to lay on the floor and watch TV with Beautiful.