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Long Day and Lots of Exercise

I got to sleep in today until about 9:30 after taking an Ambien around 10pm to shut my mind off and “sleep deep” like I so enjoy. I totally didn’t meet my caloric goals for the day, with a pitiful 2800 Calories (including the Boost Plus next to me now) and I’m still hungry. I can’t eat, though, because Beautiful crashed on the couch 20′ from the kitchen and she didn’t get much more than 2 hours of sleep last night. Welcome to the married life of one person having CF and the other who doesn’t. I’ve lost a decent amount of weight today, but that’s just normal if I don’t pig out. One day it will hover where I want it to without stressing over the numbers. For now, hopefully I can get her to bed and grab a bunch of food before things get quiet again to get my numbers up to where they need to be.

Right after breakfast, I did something I don’t remember the last time I did it: albuterol, Pulmozyme, Colistine, and 7% saline all followed up by a Vest treatment. I did all four aerosols when we got home (hold on, I’m gettting to it) but was unable to do the Vest for above-mentioned reason.

I worked on my Spanish homework that us due at midnight Sunday night while I did my aerosols and then we ate some lunch before heading out to the flea market. We walked around for a good 90 minutes to 2 hours in the (mostly) fresh air. Some people just don’t grasp the Florida statute that says if there is a roof of any kind over your head, it’s considered to be indoors… plus the area that is off-limits from egressing and ingressing. That pretty much rules out everywhere but the parking lot. Anyway, up and down each of those buildings was surely a couple of miles.

We got her engagement ring repaired for $25 by an Old World Greek master jeweler and paid him an extra $2 for polishing her wedding band.

It was definitely the most exercise I’ve had since our last amusement park venture, but without any coughing this time.

Normal Weight Affects Lung Function in Cystic Fibrosis

This is the information that sparked my near-obsession with gaining weight. I somehow knew it’s the first step in getting back to a more normal life — like I had in my late teens. Beautiful began reading the CF forums almost two years ago, and found everyone saying that their pulmonary function tests (PFTs) improved with weight gain. Here I was assuming that I had better lung function back in the day simply because I was younger, but remembering that I weighed 118 back then and never got close to that ever since had me wondering if a better life was around the corner just by gaining weight.
[Read more…]

We Didn’t Go for a Walk

Rain, rain, go away!It’s been nothing but non-stop rain here for the last 36+ hours. If it sounds like it’s stopped, don’t be deceived, it’s just sprinkling quietly. It sort of put a damper on our plans to walk after work, but I also couldn’t overcome my exhaustion from a long day of work to get on our Wii to do something cardio like the obstacle course or dance steps. Personally, I think we should borrow Dance Dance Revolution from my brother-in-law and have some real fun with cardio because I like Wii Fit for the balance games more than cardio.

I hit a new BMI record last night, but just barely — by 0.04: 20.55… still progress. I upped my enzymes all day yesterday and made sure I took them with all of my snacks because I had a rough evening the day before. It’s amazing how enzymes can make or break your day.

My wife told me last night that this is the first time that I’ve gained weight and she can see it, other than in my cheeks. My clothes just fit better because I’m now built more like a normal person, my face and neck are nice and full, and even my hands don’t look like Saran-wrapped muscles and tendons due to a thin layer of fat.

We Went for a Walk

We started my exercise routine today. My wife said she’d be willing to get up any time or drop anything to exercise with me to know that I’m exercising and visually improving. It wasn’t much of a walk, but it was a start. We trotted off to the mailbox about 1/4 mile away and made a full loop around the neighborhood on the way back, so we put in about 3/4 of a mile and saw just how many townhomes in our development have lock boxes on the doorknobs!

I’m not comfortable pushing it just yet, because I can feel that my lungs feel more like plastic than rubber, if you know the feeling. I sit at the computer and work all day, so the only deep breaths I take are when I’m coughing. Without those deep breaths, it feels like my lungs have taken on a “use it or lose it” mentality of their own. It feels like I’m only breathing with the top 1/3 of my lungs and my diaphragm can’t pull air down any further just yet.

The goal is to get there. Then the goal is to start jogging. I was on the track team in Jr. High, so I know if I can get back to that stage, my wife will have a hard time keeping up, because I was darn good for my stature. Yup, I just threw down the gauntlets.

Long Day and Lots of Exercise

I got to sleep in today until about 9:30 after taking an Ambien around 10pm to shut my mind off and "sleep deep" like I so enjoy. I totally didn't meet my caloric goals for the day, with a pitiful 2800 Calories (including the Boost Plus next to me … [Read more]

Normal Weight Affects Lung Function in Cystic Fibrosis

This is the information that sparked my near-obsession with gaining weight. I somehow knew it's the first step in getting back to a more normal life -- like I had in my late teens. Beautiful began reading the CF forums almost two years ago, and found … [Read more]

We Didn’t Go for a Walk

It's been nothing but non-stop rain here for the last 36+ hours. If it sounds like it's stopped, don't be deceived, it's just sprinkling quietly. It sort of put a damper on our plans to walk after work, but I also couldn't overcome my exhaustion from … [Read more]

We Went for a Walk

We started my exercise routine today. My wife said she'd be willing to get up any time or drop anything to exercise with me to know that I'm exercising and visually improving. It wasn't much of a walk, but it was a start. We trotted off to the … [Read more]