From the Blogposts » inbox

Fatboy Is Not a Victim of Cystic Fibrosis

September 2003At the risk of sounding like an over-priced self-improvement guru, I’ve got to nail home to the CF community and the world that CF is no longer the disease it once was. I will not be held back from any of my dreams other than beating John Elway in a quarterback contest and being an ace fighter pilot. I’ll let those to pass by on account of my size, anyway.

I’ve done a lot of surfing today to find new CFer blogs to add to my new color-coded blogroll. I found a lot of happy-go-lucky attitudes. I found a lot of misery. I found a lot of despair.

What I found the most of all was hope.

Hope of a better life than our collective CFer parents were told when we were born. I want you to watch this. All of it. This is your life, too.

YouTube Preview Image

Jesse kneelingWhen I graduated from high school, I didn’t know what I wanted to do or who I wanted to be. Looking back 13 years later, I can’t help but wonder how much of my subconscious didn’t think I’d be around. I know I wasn’t expected to live to be 18 and that family was surprised when 30 hit the birthday cake. I want to be sure that anyone who is 18 now has full expectations of being whatever they want within their physical limitations.

I’ve had some very physical jobs in my day, as you can guess from the opening photo, but there were still things that were out of my reach, but there is no reason why each and every one of us can’t be an author, motivational speaker, or inventor. There are hundreds of non-impact, sit on your butt careers out there, and I’ve taken one and I’m running to the end zone faster than Forrest Gump.

I will personally thump anyone on the head or take out the back of the knees of anyone who feels sorry for me for having CF. That’s my right to feel down when I want to feel down, not yours. Take a pity day per year to clear your system. Take one per month, if you must, but move on with your life the next morning.

Fatboy, you’ve got an attitude!

You’re darn right, I’ve got an attitude, and a few choice words stronger, too! How do you think I fended off hundreds of infections? By rolling over and letting nature take its course?! I will race you up that hill, kick your butt doing it, and then post-trash talk the whole way down after I catch my breath. That’s how Fatboy rolls and that’s how he’s always rolled. Five years of baseball, a year of football, a year of track, five years of band (including bass drum 5 miles for the Detroit Thanksgiving Day Parade and countless practices from minus 10 to 120 degrees), five years of choir that included a Superior rating at State, collegiate intermural flag football, and city league softball and indoor soccer.

Fatboy is not a victim. He is a conquerer. He is a caged animal that is ready to come out and run like the old days. Beautiful misses those pythons and strong hands in that first photo when I was throwing 40lb concrete cylinders around like Legos, anyway. ๐Ÿ˜‰

Go forth and do the same. I can’t wait to see how these girls do on America’s got Talent. I’ve never watched the show, but I will be now.


  1. Well put! It's the fighter in all of us that keeps us going, and I'm very proud of the fighter within me. She's pretty darn tough!

  2. RAWR!!!

  3. Awesome Fatboy!!! Love the post and I dig the color coded blog roll!!

  4. Thanks, Sickboy! I'm still trying to get it all into shape for those using
    IE8, but everyone else gets a top-notch experience.

    Let's go for a run someday. ๐Ÿ˜‰

  5. I like how you roll Fatboy!

  6. Thanks for stopping by and leaving a comment.

  7. Nice! I want my daughter to have this attitude!

  8. Thanks – it seems to go one way or another. I just wish I knew how to direct
    parents into how. ๐Ÿ˜‰

  9. That sounds like the little guy who used to kick back at the techs who were trying to stick you for blood on the day you was born. ๐Ÿ˜‰ And I LOVE that picture of you at MEI. Looks like you work in the oil fields or you're a rancher who just fixed his own tractor.

  10. Hehe, and that was a clean day. j/k They took that because of some
    particularly nasty stuff they made me do that day and thought it'd be great
    to take a photo. That was when I started buzzing my hair because it was
    easier to clean the dirt out of a shaved head than a head of hair.

  11. Sunvalleydm says

    Hey..just happened on your sight and love it…my 8 year old has CF…has a website too Love your blogs and comments and can totally relate to everything you write. LOVE it…keep it up

  12. Thanks for stopping by and leaving a comment. I'll check out your site tonight.

  13. Diane Margait says

    Well said, Fatboy. Well said…….
    The girls are fantastic! God bless them for spreading the word of hope to so many people!!

    • Thanks. I’ll be on the lookout for later shows, even if it’s only on YouTube or Hulu. We’re Idol and SYTYCD fans, but don’t watch that show.

  14. Maggiepoo Xo says

    love the blog fatboy . I agree with what you are saying (as much as a teen with CF can haha).

    Check out my blog

    cfprincess xxo

  15. Thanks for leaving a comment. I'm perusing your blog – I'm not seeing why you're on morphine. That's pretty extreme in the States, like for hospice or for bowel obstructions, not lungs. Can you update on that.

    Lovely prom pics. Looks like you had fun, like we all did if we did prom.