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Exhausted, But Who Cares?

Relax manTuesday night we left home to go to the airport for a pick-up run at 10pm, the flight landed at 11:45, and we got home at 12:30. No problem!

Wednesday night, we left home at 10pm, left my in-laws’ house to go to the airport at 11:45, the flight landed at 1:30am, and we got home at 2:30. Ugh, starting to feel tired. I slept in until 9:30 but woke up without an alarm.

Last night, we left home at 5pm for dinner and an evening, got home at 10:30, and I got up at 9:30.

I feel like crap. At some point in the night, all of the cookout food I ate started to take its toll on my sensitive small intestine. I gained 3 lbs eating yesterday, but by this afternoon, I’d lost 5 1/2 lbs thanks to Mr. Intestines. Days like this make me think I should just munch on carrots and cucumber slices vs. cookout food that tastes so much better and has so many more calories.

Tell me if this sounds familiar to your CF gut experiences:

  • Sort of wake up or fully wake up in the middle of the night with a combination of cramps and discomfort, and either try to sleep some more or go to the bathroom and go back to bed.
  • Finally get up and go to the bathroom, but still feel like crap.
  • Skip eating breakfast and/or drink your breakfast.
  • Feel fine after lunch, completely screwing up your meal schedule.

Ring a bell?

Owning our business = wonderful

Anyway, feeling like this made me ultra thankful to be my own boss today. For one thing, I slept in 3 days in a row and started working when I felt like it. Today, that was 1:30pm. For another thing, I sent some invoices and made 3 days’ wages my old job used to be. Sweet deal. Towards the end of the day, I e-mailed some clients to let them know that we weren’t going to wrap up today, and unlike an irate and unreasonable boss with bosses breathing down on their neck, everyone replied that was a fine plan and wished me a wonderful weekend. Two insisted that I relax and not work this weekend. How nice!

Monday will be a big day of programming to wrap up and bill for, plan out another project that is starting, and notify 2 clients that their projects are about to start and request them send me logos, copy, and their initial plans for the sitemaps.

Considering I get to do all of my treatments each day and not affect my take-home pay or working later hours because of it, I don’t have much that is more or less in my control to complain about. This week marked Beautiful’s 6-month anniversary from quitting her job and staying home with me. We’re both still alive and business is up 70%, so it must be working.


  1. cfstinabug says

    the story of my life… ๐Ÿ™ it’s a bummer having CF sometimes, but good thing you are your own boss ๐Ÿ™‚

  2. jerrymildred says

    Sorry for the tummy, but congrats on the anniversary. It was a rough road getting there, but it sure looks like God has led you to the perfect career and wife.

  3. I definately remember days/nights like that. . . that’s one weird and wonderful thing about my health post transplant. I don’t suffer the digestion issues like I did before. I have the occasional upset stomach or cramping but for the most part all of that is relatively “normal” as long as I remember to take my Creon when I eat. I feel for you, It’s a horrible feeling. But what a blessing that you work for yourself and don’t have to try to work despite it. You can rest up and feel better ๐Ÿ˜‰

  4. MiddleAgedLady says

    I must have missed a post. Why are you running to the airport every night? Drug runs? haha