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It’s Clinic Time Again

Nike+ 131.7 MilesI’ve got my quarterly clinic in the morning at my CF center at TGH. Bright and early at 7am, to be exact, so I’ll be dragging my carcass out of bed at 4:45 to get my treatments and breakfast in before heading out the door at 6am. To practice, I got up at 5:15 today, before my normal 6:30-6:45 that we’ve started to do just to have some quiet time in the morning before Boy wakes up.

Since I’ve been so busy, I thought I’d make this a bit of a State of the Fatboy post. Everyone likes bulleted lists, right? Let’s start with one of those:

  • since starting fostering, my weight dropped down to 113 as a result of
  • a total lack of appetite (more on this later)
  • my evening weigh-ins are putting in ~125 before bed now, so that’s great
  • I was getting back into walking/running when TS Debbie stuck us with 4 straight days of rain
  • overall, I feel good, but not as good as my annual in March

What’s going good

To combat my lack of appetite, I started taking the last of my Rx of Megace. Just 2 spoons per day, far less than the 5mL 3x daily on the label. That’s all I need to have the munchies all day and really pack away the food. Before I got the Megace out, I could get up, go for my walk, skip breakfast and lunch, and then pick through my dinner without any enjoyment or drive. It was miserable! I’ll be discussing a refill of Megace to take this small dose.

Business has some new stuff going on that is pretty cool, but everything aside from my appetite and new weight gain is wishy-washy on both sides of good and bad.

Needs improvement

We’ve come to expect our constant “life will be better when…” feelings that we get when we get into a time where we’re merely subsisting and getting through our days. Our days now revolve around a toddler (which got much better after we went Super Nanny on him 2 weeks ago and got boundaries re-established) and all of the different ways he can throw off our rhythm and routine. Shoot, I’ve been in a funk trying to work, trying to help Beautiful get some time to do what she used to do and still get rest, trying to rest myself (hasn’t happened), and everything just seems to be off at the moment.

We’re ready for a break, I think, but breaks don’t come with kids. We’re definitely going to consider if we need to take a month or two between placements to be able to keep up my health and the business’ health. I’ll feel a bit much like a lower form of dad if we do that, but I’m not going to throw the idea of taking care of myself so that I can take care of others.

If I’m sick everyone will suffer.

Going on nearly 28 months now without IVs, still able to run 1/2 mile without hemoptysis, and eager to see what my PFTs are after 2 months as a foster dad.


  1. “If I’m sick everyone will suffer.” – That sentence should guide every single decision you make going forth. In my ever so humble opinion of course 🙂

  2. Ggretch12 says

    Eat Fat Boy!!! Nibble, snack get your calorie food stocked! Weight will give you energy. Can Beautiful push the stroller while you walk/jog? Fresh air wears a kId out or park them at the kiddy area of the park and you exercise . Then get Shake and eat more before bed. Every calorie counts.
    You are doing great with IV’s. Be a Grazer