The daily quest to gain weight

Try to Swallow Chewable Vitamins

This entry is part 3 of 19 in the series What CFers Do

Vitamins!Have you ever had a horsepill that just refused to go down? I had a terrible week where I was trying everything I could to take my 4 normal pills, but two of them kept dissolving into this terrible mess that I ended up spitting out these shriveled carcasses after 5 attempts.

You guessed it from the title: they were chewables. Since we get whatever ADEKs my specialty pharmacy has on hand, they have a tendency to change brands every now and then. For now, they are nearly black gel caps that are a little larger than my enzymes. In the case of the chewables, they didn’t look much different than the calcium I was taking in the same mouth full… only the calcium actually went down while the ADEK stuck to my tongue like white on rice.

Thanks for letting me know ahead of time, Beautiful, instead of laughing about it after a few days. I think she claims innocence, but I wonder… she is a sneaky woman, that babe of mine. I am too fun to resist picking on, as she says.

So, remember, kids. Check the bottle (or with your spouse) to find out if you are supposed to chew or swallow.

Collect Sharps Containers and Play with Needles

This entry is part 8 of 19 in the series What CFers Do

Biohazard by ~radioACTIVE01

I have three Sharps containers in our house. One is under the upstairs bathroom sink. One is next to the couch for my colistin needles, and we have a spare in the box in the closet. Before I got my port in 2006, I’d never had a Sharps container. Home health nurses would come over to draw my peak and trough blood levels for Tobra and always wanted to know where my container was. Why in the world would I have a container? Now I know.

I pretty much only fill them up when I’m on IVs because I really enjoy my showers, so I reward myself every other night by de-accessing my port before bed and getting a good night’s sleep without any hot, sticky window or unconscious discomfort from having a friggin’ needle sticking out of my chest. Beautiful gets me up extra early when she does, I take my shower while she Facebooks, and then she accesses my port again for another two days of treatment. The site gets a tad sore by the end of two weeks, but I personally feel like it’s worth it for the quality of life of showering and having a fresh dressing every other day.

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Welcome “Normal” Medical Issues

This entry is part 10 of 19 in the series What CFers Do

It almost seems like a waste of time for a CFer to have a primary care doctor through their HMO. He asks me more questions about how I’m doing than anything helpful, but I do get good general care from him.

I just rarely ever have any “general care” issues. Any time I step foot into my primary care office, I feel like I’m on foreign turf. The office staff doesn’t remember me, they ask me to sign in and if my insurance has changed since it’s been more than 2-4 weeks since my last visit. They are surprised that I am annoyed that they don’t know what NSAIDs are when I list my allergies and that I can spell cefepime for them.

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Skip Treatments While on Vacation

This entry is part 6 of 19 in the series What CFers Do

DrivingI’m doing my best and will continue to do my best this trip, but I’ve been a bad boy most of my life – certainly my adult life. Vacation is not the time to be sitting around nebulizing and such, eh? So far, so good on this trip, though.

I remember our annual Spring Break trips to our time share in Tennessee involved bringing my aerosol compressor, but I don’t recall having to do chest PT because back in the day, that meant Mom and Dad had to do it, and they were on vacation, too.

When I spent a week in Colorado Springs back in 2002, I’m pretty sure I only brought my inhalers… probably not the best idea, considering the altitude. I did fine, though, and that’s why I never worried about treatments for a few days. Or weeks. Or months. Until I got sick and went on IVs.

Back just after we got married, the only thing we brought was my Albuterol and Pulmozyme with my ailing eFlow that took 30 minutes to dispense the meds. I was not into that at all and probably only did 1/5 of my treatments. I also didn’t do my Vest back in the day because, well, I think the Hill-Rom vest is a piece of crap forcing you to hold down a pneumatic switch to make it run. What moron thought up that idea: an active switch for a passive treatment? /end rant

Lesson learned – the hard way

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