From the Blogposts » inbox

The Power of Words

The power of words is potent. The words we use mean a lot and say a lot about those using them. It’s a big stretch to say that they mean everything, because actions speak louder than words, but we are a species that communicates with words – whether spoken or written, heard or read.

YouTube Preview Image

This is why I am so picky (some would argue, touchy) with words. Words convey so much more than people realize until they really think about it or until words affect them in a profoundly positive or negative way. I do not suffer with (or from) CF. At some point, I may be suffering from the effects of CF, but that is an entirely different statement by the message it conveys about one’s state of mind.

A sufferer is a victim. A person suffering from the effects of a disease or disability is someone with pain or a difficulty who refuses to let that be ruler of their lives. This is why I used to be so hesitant to let people know about my CF. Not so much now, but I’m still not going around as a poster boy because I’m a husband, Christian, entrepreneur, and lover of fine books and food long before I’m a CFer.

CF doesn’t define me; it is only a semicolon in my Webster’s entry. I would be giving up too many of my personal liberties to take on the shroud of that label, and I’m simply not willing to succumb to the debasement of my personal view of myself or the view others hold of me. One day I may very well need help from people, so until that day comes, I’m going to give to others.

What words are you using? How can you change your words to change your life like that man?

Fatboy Is Not a Victim of Cystic Fibrosis

September 2003At the risk of sounding like an over-priced self-improvement guru, I’ve got to nail home to the CF community and the world that CF is no longer the disease it once was. I will not be held back from any of my dreams other than beating John Elway in a quarterback contest and being an ace fighter pilot. I’ll let those to pass by on account of my size, anyway.

I’ve done a lot of surfing today to find new CFer blogs to add to my new color-coded blogroll. I found a lot of happy-go-lucky attitudes. I found a lot of misery. I found a lot of despair.

What I found the most of all was hope.

Hope of a better life than our collective CFer parents were told when we were born. I want you to watch this. All of it. This is your life, too.

YouTube Preview Image

[Read more…]