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Hope

Empty TombToday is Easter Sunday, a day of hope and restoration for millions who have put their trust in Jesus Christ for their eternity. Faith seems to be another major difference among us with CF. I’ve seen blogs proclaiming a living faith in Jesus and others who just go on “hoping” each day for a good day and others who are angry at the world.

I have to agree with one of my Cyster’s posts that I read this week right before she went in for her lung transplant. I don’t have it in front of me, but it read something like “Either I was going to be breathing like I hadn’t in years in a couple of days or like I never have before with my Maker tonight.”

There is a comfort knowing what the eternal future holds, even if the immediate future is unclear. None of us knows what tomorrow holds. Just because we have CF doesn’t mean a traffic accident or crime won’t take us away from our loved ones. If you died today, where would you spend eternity?

Happy Easter everyone. He is risen!

Fatboy Gets Juiced Up – Testosterone Injection

So, here is a Fatboy first: a video. My shipment of testosterone came today, so I shot up because the shipment was a week late and I can’t wait until Sunday because I can already feel my levels dropping. Here goes… hope it’s medically correct!

Correction: not twice per week. Twice per month.

Males with cystic fibrosis have historically low testosterone levels, something I wish they knew when I was 12! It brings about all sorts of adverse side effects, such as

  • decreased energy levels
  • decreased muscle mass
  • decreased liver function
  • decreased libido
  • decreased appetite
  • decreased bone density leading to osteoprosis
  • increased mood swings

None of those are very good, and to have all of them really decreases one’s quality of life, especially when you are thrown into a rough time in life and have low energy and a mood swing at the same time. That leads straight into depression, which I can attest to after losing my job early last year.

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Cystic Fibrosis Is Not My Identity

I will never say, “Hi, I’m Jesse. I have CF,” and I will kick anyone who introduces me in that manner. I am Jesse, the WordPress guy. “This is my husband, Jesse.” I am Jesse, the owner of this company. I am Jesse, member of Oakwood Community Church. I am Jesse, an avid gamer. Jesse the blogger. Jesse the (soon to be) college grad. Cystic fibrosis does not own me! I’m not a spokesman or a poster child for CF. I’m not against sliding into some speaking or training, but I’m darn sure I don’t want that to be my identity.

I’m more than that.

I’m also sick of those “woe is me” CFers out there who choose to be victims of the disease, their insurance, and their frigged up lives because they chose to not make anything of themselves by not applying themselves in school and having zero ambition. You do not have my pity… however…

If you so choose, I will offer to help you make something of yourself through tips, motivation, and even recommendations of how to better yourself health-wise, intellectually, and by meeting and hanging with the right people. Studies have shown that you will fall within 10% of your 10 closest friends’ income after a 5-10 year period. I believe the same goes for health, education, and everything that is pervasive in one’s life.

Anyone who wants to take me up on getting out of a lame cycle of being a victim, feel free to take me up on my offer and contact me via my contact form or Twitter @cffatboy.

Hypertonic Saline (7%) for Cystic Fibrosis

I’ve fought tooth and nail to not do 7% saline aerosols, basically since the first time I sucked it down at least 2 years ago. It’s nasty! I’ve never been able to do a saltwater rinse after oral surgery, sinus rinses, or swallow seawater. I have a very strong reaction to such a high concentration of saline, almost a gag-reflex. My chest tightens, I start to salivate like there’s a porterhouse in front of me, and my chest tightens some more.

I decided it was going to be worth the effort and discomfort after reading this article over on RunSickBoyRun.com: Hypertonic Saline Solution (7%). Come on back after reading about the empirical evidence that it works and check out my personal experiences in the last few weeks.

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