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A Heart That Has Been Touched and a Life Changed

A Life ChangedI got a personal e-mail today that touched my heart like none that I can remember. Maybe there have been others in the past related to something I’d been going through or something that I had recently accomplished at the time. This one was different. Since I’ve not asked permission to reproduce it, I will leave the person anonymous and edit it for the heart of the matter. I want to get my feelings out in pixels before they fade away into sleepy oblivion.

I was diagnosed fairly late in life (around 20) and have had my ups and downs since then. Most of my struggles have been with gaining weight and keeping a good fitness routine. My baseline weight was around 105, and I’ve dipped up and down around that number for years now.

A little over two week ago at a clinic visit, my weight was 99.7 pounds, and FEV is 42% with basically no daily exercise. I decided “enough was enough” and committed myself to a regimen that included gaining lots of weight and getting in shape. Your site was actually one of the first I found that helped get me in the mindset that I could do this.

Over the past 13 days, I’ve gained 10 pounds back and have hit the gym (both cardio and weight training). I’ve been posting on CysticLife and other sites, and many people have recommended I try to get in contact with you personally…

Mindblow! He’s, like, my brother or something. Do those weights sound familiar? How about that “enough is enough” attitude? I felt like I was reading a mirror of my thoughts back in March when I had my epiphany. [Read more…]

The Strangest Thing, Exercising Is

The strangest thing is happening because of my hardcore exercising now. Just to be clear, before March, if there was something physical to do to help someone, I had breathing problems or back pain. Both were true, but not truly keeping me from lifting a finger. Since being compliant, that has changed, but being labeled as “active” has not. Here’s what I look/sound like after our 4th session:

Two things happened after starting walk/runs:

  • I felt great!
  • I felt like crap!!

[Read more…]

Big, Big Day: Running Plus a Bonus

Running equipment wishlist itemYesterday was a huge day that really put wind in my sails like I haven’t had for a very long time. I’ll start with the bonus, because it’s just too exciting to keep quiet, even though most of you saw on Twitter and Facebook…

Becoming famous

Fatboy now has a Manhattan-based PR firm representing him for media engagements, pharma and equipment company relations, and for things going on with this site (such as more product reviews). “Excited” doesn’t come close to encompassing my elation about this big step. I am being booked for two video shoots coming up in the next few weeks and this is the time of year that companies are looking at their budget for next year, so my people are going to be pimping me hard to get things rolling for 2011 – especially trade conferences and endorsements of products that I can fully endorse and stand behind because I’ve used and benefited from them.
[Read more…]

How to Kick Cystic Fibrosis’ @$%

Yeah!This site is essentially all about kicking the crap out of cystic fibrosis in any way possible. First, it was my weight, which has given way to providing for my household during our increased medical expense period involving Beautiful’s allergies. With those expenses mostly out of the way, aside from two expensive and completely uncovered prescriptions, I am free to start gaining the weight back that I lost in the last two months. I’m not fretting about that weight loss, though, because I had the weight to lose this time. Any other time, this stress would have sent me spiraling down under 100lbs and back onto IVs. The weight is allowing me to fight back and stay healthy at 120-123lbs with relatively little effort in the eating department.

My next goal, aside from amassing a $50k savings account for a CF rainy day, is to get in shape by exercising. I don’t mean the namby-pamby exercising that we did earlier when I rode my bike around or we walked a mile. I’m talking about cardio. I haven’t done any cardio since I was 19, so that makes it… 12.5 years since that last stressed my heart and lungs. I grew up playing baseball, football, basketball during recess, track, and even played adult indoor soccer and softball after graduation and inter-mural flag football at USF during my sophomore year. Yeah, I was a sports stud… well, maybe not a stud, but I was in serious shape back then.

This week, starting on Monday, I loaded up the Free Step program on our Wii Fit Plus. [Read more…]