4th Anniversary

Being done with school was a big deal for freeing up my schedule, but now it’s been full again… and it’s about to get more full. Remember, Fatboy is not a victim of cystic fibrosis!

I can tell you more details about my next career move now that things are a LOT more concrete. I’ve mentioned on there and my social networks that I now have a Manhattan PR firm representing me and my public CF interests for advocacy, awareness, internal and external publications, websites, product testing/reviews, media coverage, and public speaking. That got me pretty excited and I was more sure than not that something was going to come of it, but it only took a day.

Gilead (makers of Cayston) will be flying a film crew here to spend the day with me in late November or early December to see what a day in the life of Fatboy looks like, film me training for the 5K in February, and there is talk of coming to film me crossing the finish line (no pressure, Fatboy!!) on race day.

I had another call with the PR firm the next week and they sent me another contact that same evening about another entity of Gilead who pretty much want to “use” me for all of the activities above. They will be sending a welcome packet in the mail now that I did an hour-long phone interview with them today to find out pretty much everything about me to know how best to call upon me for certain opportunities, which I said “yes” to all of.

This would be pretty overwhelmingly exciting and potentially lead to giving me a big head if it wasn’t for my new-found goal for actually using my having CF for good. [Read more…]