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Cystic Gal, Beth Peters, Is in ICU Now

Word from her uncle and sister says that it was a textbook surgery and that her new, pink lungs are a perfect fit for her. We are all waiting with bated breath until she makes her own first communication. Knowing her, it won’t be long. You know Beautiful will have instructions to leave my iPhone on my lap at all times if I ever need to get a lung transplant.

Go Beth, go!  Cystic Gal

Cystic Gal Got The Call

Cystic Gal Got “The Call”

She’s been quiet for a while, but word got around that she got the call after lunch, or at least that is when the one person I heard it from posted it.
Her site notes:

As the primary recip. …
Will update. Gotta go to hospital!!
Big prayers and love and light my way, pls.

What Drives You?

DriveI’ve been having an heart-felt back and forth with a concerned mom via my contact form whose 16-year old son has become non-compliant recently. He’s described as wonderful and smart, but just doesn’t care to do many, if any, of his treatments any more and stopped a sport he had played previously. I got to wondering what drives him, because I’ve been there, done that, and bought the t-shirt.

I had to burn that t-shirt the day I knew I wanted to marry Beautiful, but it still didn’t fully change what I was doing to make sure that I gave us the most time together. I’ll place a lot of the blame on my eFlow not working properly to allow me to actually have the time in the day to do my treatments (and I probably wasn’t getting the meds as I should when I did them most nights). Since that’s a cop-out, I’ll admit that I should have been more aggressive in doing whatever it took to get to a solution to be able to do my nebs properly. I take full responsibility for that end of the deal. It was stupid and will never happen again. Now, let’s get back to the underlying issue at hand: drive.

“If you do not change direction, you may end up where you are heading.”

Lao Tzu

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Hattie Dunstan: New Lungs, New Color

Hattie Dunstan

Hattie Dunstan

On Monday, July 5, 2010, Hattie Dunstan got the call at 1am to come to Toronto General Hospital for new lungs. By 4pm, the miracle of transplantation was complete and her cystic fibrosis-riddled lungs were gone. Her new life, while still heavily sedated until the next morning, had begun.

I love reading these stories, because it was one more person on my blogroll who went from the purple “Waiting for new lungs” status to the green “Transplant recipient” status. I’m looking forward to not being able to find anyone on the list blogging away their days waiting for new lungs. I’d rather that my list be all green “new lung” blogs, white “I’m doing fine” blogs, and pink “I’m sticking by my CFer” blogs. Say “no” to purple!

Two more on the list to go! Hang in there Beth and Dustin. I was just reading Hattie’s post from July 2nd a moment ago, and I got choked up remembering reading it on the 4th, with none of us knowing she was getting new lungs the very next day! Here is what she wrote:

The word breathless has taken on a whole new meaning. I thought I knew what being out of breath was. I thought I knew what not breathing was like…no…not until this week did I know what it is like to struggle…and that’s saying something!

I cannot even get over how much my breath has now been taken from me. Doing anything leaves me gasping, haunted, winded, exploded, breathless. It is absolutely insane, terrifying and unbelievable that something as breathing can be soooo hard, even harder then before!

Amazing! Go, Hattie, go!