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The Return of Fatboy

Too fat

July 15 2010

I’m sick and tired of being sick and tired about my weight, living under the guise of “Fatboy” and resting on my laurels from last summer.

No more!

As an avid listener of Dave Ramsey, who says “If I can control the man in the mirror, I can be rich and thin!” I have to take the same approach to my life and get me under control so I can be rich, healthy, and fat. Same principles apply: control yourself, don’t go with the flow. No more preaching from my soapbox about what I did do or what others can/should do to improve their lives. This is “go” time again for me, same as it was last spring.

What is the State of the Fatboy?

Sadly, I went from 135 at the end of the summer in 2010 down to a weigh-in of 103 a couple of weeks ago. That was the straw that broke my back this year. 103! The last clinic knew, I was 116 in April when I said I was dying because I was so exhausted and losing weight and coughing constantly. The doctor amusingly looked at me, saw and verified that I was non-compliant because I was working my butt off on both ends of the candle (you know the saying) and needed to do my darn treatments and take a break.

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To G-Tube or not to G-Tube

g-tubeOne of our closest online CF friends is struggling with a decision about whether or not to opt for a g-tube for her sweet baby boy. He started out life quite chunky but has reduced to the 5th percentile now that he’s around a year old. She’s asked for wisdom with the decision, so I offered my 2 cents, which she has since insisted that I give… so here it is for open discussion.

Make no mistake about it, a g-tube is a huge deal. I’m not sure if my parents ever struggled with that option for me or not, but I do remember a time when they were really being pushed by the doctors to do nightly NG tube feedings, but I have a serious gag reflex and have puked every time I receive one. Sorta defeats the benefits right off the bat when you lose your dinner before bed, in your bed.

In my opinion, there has to be an ever-present consideration for emotional well-being that ranks just below health well-being. Beautiful has told me more than a few times to stop thinking about my bad parts about childhood related to school, the other kids, and how being the odd one out most of my life shaped a significant part of my personality. I was, simply put, different. Kids are both the meanest monsters alive and the sweetest creatures created, all in the same package. They both pick on anything they can see that is different while ignoring many obvious handicaps. To me, adhering to a medical textbook’s guidelines of what is healthy at the expense of childhood development is a potentially more severe problem waiting to happen than anything associated with being a low weight, as much of a pro-weight guy as I am. Now for some explaining on my part.

I was a chubby little guy as a toddler, despite my big meconium ileus surgery that had me on super-weak formula for months. I’m pretty sure my mom still has the growth charts of my height and weight percentiles from the early years, but I remember myself being in the 5th percentile on height for as far back as I can remember. I was in a class of 72 kids and only 2 others were close to my height, but both were still taller by a smidge.

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Clinic Update, from the Bowels of TGH

I’m still in clinic waiting to see the dietician (for obvious reasons regarding the site), even though I’m not scheduled to see her. Let’s take a look at who wins the FEV1 guessing game, shall we?

The guesses were:

Beautiful: 34% FEV1 %
Fatboy: 38% FEV1 %, 120lbs, 98% O2 sat
Unknown CFer: 36% FEV1 %,

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Fatboy’s Historical Weight and Lung Stats

My CF coordinator is the best in the country. /hat tip to Sue @ TGH!! She compiled my PFT and weight stats since 2006 for the site for all of us to see. I put it into a simple little Excel chart in a jiffy, but will be making it look awesome later and edit this wording accordingly.

Pink = Weight -- Yellow = FEV1 %

See that really low trough around Data Point 8? That’s just 3 weeks before our wedding. Yeah, I was sick, sick, sick! See that slope immediately following? The next point was a week after our wedding and the next point was 3 months later; my highest percentage in the last 3 years. You can see every time I go on IVs pretty clearly with this graph with the down, down, up pattern.

This is the time for that trend to end forever!

  • time to get my game on with keeping my weight up (check!)
  • time to start walking (check!)
  • time to start running (let’s walk first)
  • time to start pumping iron (hold my feet to the fire)